Not much happened today. Me, Annabelle, and my mom binge watched say yes to the dress. At home we don’t have cable so we’ve only watched the show at our friends house. We just watched it and I read some wattpad, my mom read on her kindle and Annabelle played sims which is so surprising. We went on a walk and got some candy from the gift shop. We started walking further but me and Annabelle were both having some breathing problems so we headed back to our rooms. Other than those “highlights” of my day we just went on with our normal schedule.
So today there’s a car show at my hospital. They do this once a year where some cars like a monster truck and a transformers truck go to the front of the hospital and a bunch of other cars go on top of a parking garage. Since we can’ go to the roof of a parking garage since we have cf we just went to a window where we could see the parking garage and then we went down to the front of the hospital. Then we sat in a garden thing on the main floor and talked for a while.
It’s weird to be here while the car shows going on again because last year we were here for it too. We get bags from it that has a bunch of stuff in it but since were not really into cars we put them in gift baskets and auction them off at our gold outing we have once a year for cf.
I got my dressing changed which is always fun. I also have been painting. I finished painting a painting that I wasn’t done with but I think I uploaded a picture of it before it was done, I’m not sure. I also started painting a landscape of the view from my room window. I just have watercolor since its small and easy to pack but my moms bringing my acrylics and some canvases tonight so I’m planning on working on some really detailed paintings to keep myself occupied.
That’s all for now, bye!
Here’s a picture of my beautiful taco dog blanket
So today was so fun. I was nauseous while doing therapy and then I was for half of the day. My nurse gave me Benadryl for it because the nausea medicine they could give me can cross interact with other meds I’m on. Also Benadryl makes me fall asleep so I kept going in and out of sleep. I was dry heaving for a couple minutes but I never actually threw up. It could be since I’m so backed up but I’m doing a clean out which is where you take a bunch of mirilax and laxatives. So for the whole day I’ve been hooked up through my gtube getting that. I’ve also been connected to iv fluids so I don’t get dehydrated while on the laxatives.
My nurse said that I was going to get my picc at 9. I got on my gown, got disconnected from everything and such but it turned out I wasn’t getting it today. So I’m getting it tomorrow at 8:30 or so. I also got pfts done today and they went down some which I expected. But I’m happy because my effort was good and I didn’t close off the back of my throat which I always do and when I do that it makes the numbers inaccurate.
I keep going up on the rate of my gtube pump which basically controls the amount of water or formula and how much goes into my stomach a hour. Right now I’m at 300ml/hour and I think I’m going to stay at that. I would be on it all night but since I’m NPO I can’t drink or eat anything after midnight but I am hooked up to iv fluids until I go down to the OR. Right now I’m watching the office (I mean let’s be honest, when am I not) and I was airing for repository to come in so I can do my last treatments.
So my iv blew. Why does this always happen. Oh ya I threw up…great night.
So I got my picc. I got into the pre op room and waited for my sister to go back. She got the relaxation stuff which we always get before we go back since we have anxiety and anyone would be nervous for any procedure even if this is my sisters 5th picc and my 6th. Then it was my turn, we had turned on finding dory and I was laying with my mom and talking, I talk a lot when I’m nervous. And then I got the “loopy” stuff and headed off into the OR. I was already tired so with the loopy stuff I was about to fall asleep. I got hooked up to a bunch of stuff and put under. This time was weird because I had never woken up in the OR before, I always wake up after in a room. Though I think I feel back to sleep.
Afterwards I got back to my room, changed, used the bathroom and got my iv taken out. I also ordered food once the doctor changed my chart saying I wasn’t NPO anymore. For the clean out through my gtube I am currently at the highest rate which is 400ml/hour. It can make anyone nauseous so that’s why I was so nauseas yesterday and I probably will be later too but I’ll get something for it.
Anyways I’ll probably get a bronchial scope Tuesday or Wednesday because my cf doctor wants to do it and that’s when she has free time. I’ll also be getting a CT scan sometime around there too. I think I’m just going to be resting for the rest of the day since I’m still tired from anesthesia and I know I’m going to get nauseas again.
That’s all for now, bye!
I realize that when I was in Paris I uploaded a post called 40 followers! but I need to make another one for the halfway to one hundred mark! I can’t believe how far I’ve come with this blog, I want to thank everyone who’s been here and actually cared to read about my story and my life with cf. Thanks again…