Tag: Cystic Fibrosis
Sunflower Drawing
The A&R Journals: Hospital Day #4-5
Day #4
Not much happened today. Me, Annabelle, and my mom binge watched say yes to the dress. At home we don’t have cable so we’ve only watched the show at our friends house. We just watched it and I read some wattpad, my mom read on her kindle and Annabelle played sims which is so surprising. We went on a walk and got some candy from the gift shop. We started walking further but me and Annabelle were both having some breathing problems so we headed back to our rooms. Other than those “highlights” of my day we just went on with our normal schedule.
Day #5
So today there’s a car show at my hospital. They do this once a year where some cars like a monster truck and a transformers truck go to the front of the hospital and a bunch of other cars go on top of a parking garage. Since we can’ go to the roof of a parking garage since we have cf we just went to a window where we could see the parking garage and then we went down to the front of the hospital. Then we sat in a garden thing on the main floor and talked for a while.
It’s weird to be here while the car shows going on again because last year we were here for it too. We get bags from it that has a bunch of stuff in it but since were not really into cars we put them in gift baskets and auction them off at our gold outing we have once a year for cf.
I got my dressing changed which is always fun. I also have been painting. I finished painting a painting that I wasn’t done with but I think I uploaded a picture of it before it was done, I’m not sure. I also started painting a landscape of the view from my room window. I just have watercolor since its small and easy to pack but my moms bringing my acrylics and some canvases tonight so I’m planning on working on some really detailed paintings to keep myself occupied.
That’s all for now, bye!
The A&R Journals: Hospital Day #2-3
Here’s a picture of my beautiful taco dog blanket
Day #2
So today was so fun. I was nauseous while doing therapy and then I was for half of the day. My nurse gave me Benadryl for it because the nausea medicine they could give me can cross interact with other meds I’m on. Also Benadryl makes me fall asleep so I kept going in and out of sleep. I was dry heaving for a couple minutes but I never actually threw up. It could be since I’m so backed up but I’m doing a clean out which is where you take a bunch of mirilax and laxatives. So for the whole day I’ve been hooked up through my gtube getting that. I’ve also been connected to iv fluids so I don’t get dehydrated while on the laxatives.
My nurse said that I was going to get my picc at 9. I got on my gown, got disconnected from everything and such but it turned out I wasn’t getting it today. So I’m getting it tomorrow at 8:30 or so. I also got pfts done today and they went down some which I expected. But I’m happy because my effort was good and I didn’t close off the back of my throat which I always do and when I do that it makes the numbers inaccurate.
I keep going up on the rate of my gtube pump which basically controls the amount of water or formula and how much goes into my stomach a hour. Right now I’m at 300ml/hour and I think I’m going to stay at that. I would be on it all night but since I’m NPO I can’t drink or eat anything after midnight but I am hooked up to iv fluids until I go down to the OR. Right now I’m watching the office (I mean let’s be honest, when am I not) and I was airing for repository to come in so I can do my last treatments.
So my iv blew. Why does this always happen. Oh ya I threw up…great night.
Day #3
So I got my picc. I got into the pre op room and waited for my sister to go back. She got the relaxation stuff which we always get before we go back since we have anxiety and anyone would be nervous for any procedure even if this is my sisters 5th picc and my 6th. Then it was my turn, we had turned on finding dory and I was laying with my mom and talking, I talk a lot when I’m nervous. And then I got the “loopy” stuff and headed off into the OR. I was already tired so with the loopy stuff I was about to fall asleep. I got hooked up to a bunch of stuff and put under. This time was weird because I had never woken up in the OR before, I always wake up after in a room. Though I think I feel back to sleep.
Afterwards I got back to my room, changed, used the bathroom and got my iv taken out. I also ordered food once the doctor changed my chart saying I wasn’t NPO anymore. For the clean out through my gtube I am currently at the highest rate which is 400ml/hour. It can make anyone nauseous so that’s why I was so nauseas yesterday and I probably will be later too but I’ll get something for it.
Anyways I’ll probably get a bronchial scope Tuesday or Wednesday because my cf doctor wants to do it and that’s when she has free time. I’ll also be getting a CT scan sometime around there too. I think I’m just going to be resting for the rest of the day since I’m still tired from anesthesia and I know I’m going to get nauseas again.
That’s all for now, bye!
50 Followers!
I realize that when I was in Paris I uploaded a post called 40 followers! but I need to make another one for the halfway to one hundred mark! I can’t believe how far I’ve come with this blog, I want to thank everyone who’s been here and actually cared to read about my story and my life with cf. Thanks again…
-A&R
The A&R Journals: Hospital Diaries #1
So yes I ended up getting admitted. I am going to be in for two weeks, my doctor wants me to get a bronchial scope and a cat scan done on my lungs to see what’s really going on. I hate admission day. They call us the day we planned on being admitted telling us what time we should come. And then everything is hectic from there on out. Getting X-rays, blood draws, ivs, pfts, treatments, setting up meds and a schedule. I’ll keep updated as the day goes.
11am
I woke up and and did my treatments. This consists of inhalers, nebulizers, and my vest. Then I took my morning meds. I wanted to take a shower before going in which I recommend because in the hospital you can’t take a nice, long shower because of ivs and such. Anyways after this I finished packing up everything like my vest and pillow+blanket.
3:30pm
My mom just got the call and we’re going to be heading to the hospital soon.
4:03pm
I’m in the car now. I’m bored and am just playing games on my phone and listening to music. I’m nervous to get a iv and I hope I can get a picc tomorrow because my iv usually blows within two days. I hate going to the hospital when being admitted because I have a bunch of my stuff since I’m going to be there for two weeks.
We usually park on the roof of the parking garage because there’s usually a lot of open spots there and we want to be close to the elevators so we don’t have to walk much with all our stuff. The reason why it took so long for us to be called is because me and my sister wanted rooms next to each other since we’re both being admitted. Anyways I’ll update once I get to the hospital.
4:30pm
I’m at the hospital and unpacking, my nurse came in along with other doctors and rts and talked about what we’re going to do and when I’m going to get X-rays and blood work done.
6pm
I just got my iv. The lady had to poke me twice but I have it in my left hand. We are getting piccs tomorrow sometime, hopefully in the morning. I’m about to go down for X-rays. Well they were supposed to at 6 but transport is always late. I’m getting a X-ray of my lungs and stomach since I’ve been constipated, I know..TMI but it’s true!
6:48
I just got back from X-rays. My moms going to order pizza from a amazing restaurant called pizza house and I’m about to be hooked up to Antibiotics. I already have a bruise from where I got poked for an iv first and it’s really sensitive. Anyways I think I’m going to end this post here and just to be clear about my schedule while I’m here ever other day I’m going to post a hospital Diaries and then the other days I’m going to be posting a art one.
Late Night Thoughts: Health, School, and New Ideas!
(Cute cats from a cat cafe I went to during my last admission)
So I can’t sleep… shocker I know! I don’t get good sleep and I have a lot of problems falling asleep. I did get a sleep study done and I have some breathing issue but I’m getting it sorted out. Anyways since I’m sick my sleep is like 10x worse. Sometimes I’ll be up anywhere from 2 til 5am, yes 5 freaking am, as in the morning! And then I’ll sleep til 1pm. I can’t sleep because of my breathing issues and just the overall uncomfortableness in my lungs, I’m guessing from all the mucus.
Anyways as you can tell I can’t sleep. And the reason this time being breathing problems. I am taking my inhaler even though it never helps but mine as well try it… again. I’m taking 4 puffs instead of 2 so maybe it will help, probably not. I hate taking 4 puffs though because it makes my hands shaky and I can’t sit still. I’ve been on a antibiotic for my lung infection for over a week and have also been put on a steroid. My last admission was in the beginning of June so it’s only been a month or so since this happened last. I went to clinic last week and my pfts were ok, my doctor said they weren’t where she wanted them but it’s not like I needed to be admitted right then and there.
Anyways I am aware that this post I all over the place but that’s kind of the point of my late night thoughts writings is just small updates about my health and art and other random stuff. I’m being homeschooled this year. Me and my sister have wanted to be homeschooled since 7th grade which is the time our health started to go downhill. It’s too much for us to miss so much school and have to make up so much work and it just adds to anxiety. I’m actually pretty excited because I can do more art stuff and maybe even grow me and my sisters YouTube channel and start posting stuff regularly and I also want to start uploading to my blog more. For my electives, and yes there is electives for online school, I want to do some art and take a veterinarian science class. When I’m older I want to do something with animals or art as my career but I still have some time to decide but even if I chose one I would still do the other one. When I’m old enough I want to volunteer at pet shelters and foster animals.
So as I’m typing this it’s Sunday night, we’ll really Monday morning, “I’m” (aka my mom) is going to call my hospital “today” or Tuesday. I’ll of course give updates and if I get admitted I’m going to try to do art posts still but I will still do hospital diaries. But I might change it up a bit so I will continue to record my health even after I’m discharged since I think I’m going to go back to staying in the hospital a week and doing two weeks of antibiotics at home. I would talk about my day, my antibiotic schedule, getting blood draws and just overall my life of when I’m sick. Maybe I can call it the Brianna Diaries? Bri Diaries? The Salty Life Journeys/ journal/ diaries? Something with A&R in it? I don’t know give me some suggestions in the comments.
That’s all for now bye…
-A&R (art and roses)🌹
