50 Followers!

I realize that when I was in Paris I uploaded a post called 40 followers! but I need to make another one for the halfway to one hundred mark! I can’t believe how far I’ve come with this blog, I want to thank everyone who’s been here and actually cared to read about my story and my life with cf. Thanks again…

-A&R

The A&R Journals: Hospital Diaries #1

So yes I ended up getting admitted. I am going to be in for two weeks, my doctor wants me to get a bronchial scope and a cat scan done on my lungs to see what’s really going on. I hate admission day. They call us the day we planned on being admitted telling us what time we should come. And then everything is hectic from there on out. Getting X-rays, blood draws, ivs, pfts, treatments, setting up meds and a schedule. I’ll keep updated as the day goes.

11am

I woke up and and did my treatments. This consists of inhalers, nebulizers, and my vest. Then I took my morning meds. I wanted to take a shower before going in which I recommend because in the hospital you can’t take a nice, long shower because of ivs and such. Anyways after this I finished packing up everything like my vest and pillow+blanket.

3:30pm

My mom just got the call and we’re going to be heading to the hospital soon.

4:03pm

I’m in the car now. I’m bored and am just playing games on my phone and listening to music. I’m nervous to get a iv and I hope I can get a picc tomorrow because my iv usually blows within two days. I hate going to the hospital when being admitted because I have a bunch of my stuff since I’m going to be there for two weeks.

We usually park on the roof of the parking garage because there’s usually a lot of open spots there and we want to be close to the elevators so we don’t have to walk much with all our stuff. The reason why it took so long for us to be called is because me and my sister wanted rooms next to each other since we’re both being admitted. Anyways I’ll update once I get to the hospital.

4:30pm

I’m at the hospital and unpacking, my nurse came in along with other doctors and rts and talked about what we’re going to do and when I’m going to get X-rays and blood work done.

6pm

I just got my iv. The lady had to poke me twice but I have it in my left hand. We are getting piccs tomorrow sometime, hopefully in the morning. I’m about to go down for X-rays. Well they were supposed to at 6 but transport is always late. I’m getting a X-ray of my lungs and stomach since I’ve been constipated, I know..TMI but it’s true!

6:48

I just got back from X-rays. My moms going to order pizza from a amazing restaurant called pizza house and I’m about to be hooked up to Antibiotics. I already have a bruise from where I got poked for an iv first and it’s really sensitive. Anyways I think I’m going to end this post here and just to be clear about my schedule while I’m here ever other day I’m going to post a hospital Diaries and then the other days I’m going to be posting a art one.

Late Night Thoughts: Health, School, and New Ideas!

(Cute cats from a cat cafe I went to during my last admission)

So I can’t sleep… shocker I know! I don’t get good sleep and I have a lot of problems falling asleep. I did get a sleep study done and I have some breathing issue but I’m getting it sorted out. Anyways since I’m sick my sleep is like 10x worse. Sometimes I’ll be up anywhere from 2 til 5am, yes 5 freaking am, as in the morning! And then I’ll sleep til 1pm. I can’t sleep because of my breathing issues and just the overall uncomfortableness in my lungs, I’m guessing from all the mucus.

Anyways as you can tell I can’t sleep. And the reason this time being breathing problems. I am taking my inhaler even though it never helps but mine as well try it… again. I’m taking 4 puffs instead of 2 so maybe it will help, probably not. I hate taking 4 puffs though because it makes my hands shaky and I can’t sit still. I’ve been on a antibiotic for my lung infection for over a week and have also been put on a steroid. My last admission was in the beginning of June so it’s only been a month or so since this happened last. I went to clinic last week and my pfts were ok, my doctor said they weren’t where she wanted them but it’s not like I needed to be admitted right then and there.

Anyways I am aware that this post I all over the place but that’s kind of the point of my late night thoughts writings is just small updates about my health and art and other random stuff. I’m being homeschooled this year. Me and my sister have wanted to be homeschooled since 7th grade which is the time our health started to go downhill. It’s too much for us to miss so much school and have to make up so much work and it just adds to anxiety. I’m actually pretty excited because I can do more art stuff and maybe even grow me and my sisters YouTube channel and start posting stuff regularly and I also want to start uploading to my blog more. For my electives, and yes there is electives for online school, I want to do some art and take a veterinarian science class. When I’m older I want to do something with animals or art as my career but I still have some time to decide but even if I chose one I would still do the other one. When I’m old enough I want to volunteer at pet shelters and foster animals.

So as I’m typing this it’s Sunday night, we’ll really Monday morning, “I’m” (aka my mom) is going to call my hospital “today” or Tuesday. I’ll of course give updates and if I get admitted I’m going to try to do art posts still but I will still do hospital diaries. But I might change it up a bit so I will continue to record my health even after I’m discharged since I think I’m going to go back to staying in the hospital a week and doing two weeks of antibiotics at home. I would talk about my day, my antibiotic schedule, getting blood draws and just overall my life of when I’m sick. Maybe I can call it the Brianna Diaries? Bri Diaries? The Salty Life Journeys/ journal/ diaries? Something with A&R in it? I don’t know give me some suggestions in the comments.

That’s all for now bye…

-A&R (art and roses)🌹

Ferris Wheel

giant-ferris-wheel-3241571_960_720

I’m on a Ferris Wheel

Except it never stops going around

As it gets older it starts to break down

Rusts

Broken parts

Eventually it stops

But you still can’t get off

Your stuck at the top

Looking down everything is fine

Everyone is going on with there life

But your stuck

Eventually someone fixes it

But it goes even faster this time

And you still can’t get off

Its constantly going around

Each day can be different

You could be lower on the wheel

Everything is fine

Until your at the top

And you still can’t get off