So in honor of Rare Disease Day I’m going to write about the spoon theory!

As most of you know I have cystic fibrosis which is a genetic rare disease that has no cure, it’s also known as cf or 65 roses. These past two years have been hard, my health has started to decline and I’ve developed depression and anxiety. I’ve read a lot of stuff and one thing I discovered was the spoon theory. It’s a way for people with chronic illnesses to explain their energy levels in spoons.

Say I have 12 spoons in a regular day

It takes me 1 spoon to get out of bed

2 to take a shower

And so on

When I’m having a bad day I’ll have less spoons

Say I wake up with 5 spoons

I have to prioritize what I’m going to do

If I use more then I have it means I’m working on negative spoons, which then takes spoons out of the next day