Day in the Life Traveling with a Chronic Illness

Day in the Life Traveling with a Chronic Illness

(Here is the beautiful view from me and Annabelles room in Paris)

First I wake up to my feeding tube machine going off, then I either go back to sleep or get up depending what time it is. After that I do therapy. Me and Annabelle are switching between doing the arubika and the vest in the morning. The arubika is something that does the same job as the vest but you blow in it and you don’t have to plug it in. So we would each do our nebulizers, then I would do the vest while Annabelle does the arubika or the other way around. Then I would go take my meds and get ready for the day.

After that we go and do whatever we have planned for the day. When we get back to the apartment me and Annabelle do therapy again and depending on what time it is I’ll take my night meds. Then I’ll hook up my tube feeds. I had to make a makeshift way to set up my feeding bag and pump.

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