My Gastronomy Tube Journey

A Gastronomy Tube, or gtube for short, is a feeding tube that is placed directly into the stomach and is used to get more calories.

I have a gtube because of lack of appetite and since I have cystic fibrosis I need more calories than a normal person my age.

My journey starts in January of 2017. I was getting sick a lot and was basically sick the whole year on and off. Due to this I started not having much of an appetite and now I don’t have any. I started losing weight and that didn’t help with my health issues. I was admitted three times that year, each time about one week. My second admission I got an Ng Tube, like a gtube but it goes down you nose and throat to your stomach.

Honestly that was a horrible experience for me. The nurse didn’t use numbing stuff to spray down my throat, I was given no meds. I was gagging and throwing up all night. I couldn’t talk and I couldn’t move without gagging. I only had it for a little bit since they just wanted to see if my stomach could handle the formula rate. The next day it was better and I think why it was so bad is because I didn’t get any meds before hand.

I’m not sure when but we decided that I should get a gtube. I got my surgery scheduled but had to get it rescheduled because of respiratory problems. I eventually got it November 3rd, and I was only hospitalized for one day. To be honest I was in a lot of pain but I was on some meds for it. It was really hard for me to get up on my own but I could walk. It was interesting trying to transition to doing the feeding but I’m used to it now.

I hope that this helped with some awareness about feeding tubes.

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